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Burton mum-to-be wants more support for MS sufferers

By Burton Mail  |  Posted: August 22, 2014

By Matthew Cobb

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A BURTON woman with multiple sclerosis is calling for more support to assist with those diagnosed with the condition.

Rebecca Perry, who lives in the Regents Park estate in Branston, says that she is struggling to get access to funding and support that she is entitled to because the disease does not usually lead to any visible signs of a disability. Rebecca says that more can also be done to educate others on the condition so that they are not as quick to judge.

She has spoken out after reading the story of Sophie Lewis in the Mail, who also suffers from multiple sclerosis and was confronted by members of the public in the town for using disabled parking spaces despite carrying no obvious signs of a disability.

People with MS often appear fine, however it affects their mobility and can lead to problems with balance as well as extreme fatigue.

Rebecca says that she has struggled to get support for her condition from various groups, including Trent and Dove housing and often has to seek help from East Staffordshire Citizen's Advice Bureau to gain her entitlements.

She told the Mail: "It's quite hard to receive funding because there's no visible sign of having a physical disability, so often people don't think that you are disabled, which is not the case at all.

"I'm finding that I'm increasingly having to nag the relevant bodies to get what I'm entitled to and I think that people who are diagnosed with multiple sclerosis are often ignored. In my opinion it's not right."

Rebecca, who is currently pregnant, has also had trouble trying to claim benefits. Her husband does not want her going out to work after she suffered a miscarriage during her last pregnancy, which led to a relapse in her condition.

She said she has applied to claim jobseeker's allowance but was refused because her national insurance contributions over the last two years have been insufficient.

Rebecca continued: "I asked them about the contributions I made before when I was working but that wasn't enough. I just think that more could be done to support people like me."

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