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Castle Gresley mum walks the walk to raise Rainbows Hospice funds

By Burton Mail  |  Posted: September 02, 2014

Feature on Carers - Mother + Daughter Barbara + Freya Smyth

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A MOTHER whose daughter suffers from two life-limiting conditions is taking on a moonlight challenge to raise cash for the hospice that cares for her.

Freya Smyth, of Castle Gresley, suffers from a rare form of epilepsy called Lennox Gasuat Syndrome, which can cause as many as 10 seizures a day, and Rett Syndrome, a genetic disorder that affects one in 12,000 females and causes severe physical and mental disabilities.

Now her mother Barbara is taking on Rainbows Hospice's Moonlight Walk to raise vital funds and awareness for the site where the 20-year-old heads for respite care.

Mrs Smyth said: "Rainbows is a big part of our life. When I first took Freya there I was apprehensive.

"When you are caring for her 24 hours a day, it's hard to let go and trust other people to care for her.

"But when I go to Rainbows I know I can leave her there and she'll be fine.

"I am really looking forward to doing the Moonlight Walk. I have done it before and it was really good fun – it's nice to go round and have a chat with the other mums.

"When your daughter goes to Rainbows it makes the event even more special. I want to give back what I can and I would encourage as many women out there as possible to take part."

Freya is unable to communicate, she is tube fed, uses a wheelchair and has profound learning difficulties. Since 2006 she has been visiting Rainbows, in Loughborough. Mrs Smyth will take part in the walk on September 27 in Loughborough.

Katie Baxter, community and events manager at Rainbows, said: "It is wonderful that Barbara has chosen to take part in the event again as she knows first-hand how important the work is that is carried out at Rainbows."

More information on the walk is available by visiting www.rainbows.co.uk/moonlightloughborough

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