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Family affair has sisters rally to help brave Luke

By Burton Mail  |  Posted: April 29, 2014

  • 24/09/13 Muscula dystrophy fund-raisers - Baker Street, Stapenhill Chloe Evans, 13, is holding an event to raise money for the muscular dystrophy campaign as her brother Luke Gower suffers from the condition.

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A FAMILY hit by adversity when its youngest member was diagnosed with a debilitating condition has rallied to try to overcome the issues which have been presented to them.

Luke Gower was a happy and normal little six-year-old when he was diagnosed with muscular dystrophy, and the world turned upside for him, his mum Michelle and his sisters Chloe Evans and Paige Goy.

Now nine, the Stapenhill lad can barely walk or hold his head up because of the condition, but with the help of Chloe, 14, and Paige, 11, his mum is able to get him through every day.

“They are both really good girls,” said Mrs Gower, of Baker Street, Stapenhill.

“They help feed him; they help me with putting him to bed; they entertain him when I’m bust; they will take him out around the park with our dog; they hoist him if I’m busy doing something.

“They’re very clued up on how to use medical equipment and how to help with everything,” she added.

And the girls’ support does not end there, as Chloe has been instrumental in organising fund-raising events for the Muscular Dystrophy Campaign.

Several events have already taken place, and six more are planned over the next few months, including a ‘jogathon’, a ‘bikeathon’ and a ‘readathon.’

“She’s all about raising money for Luke’s charity. It’s hit her hard, so she’s very keen to help other people like him,” Mrs Gower said.

Luke’s parents took him to see a doctor three years ago, as he kept falling down, and after a series of tests he was diagnosed with Emery-Dreifuss muscular dystrophy.

His condition has deteriorated since then, and he has recently struggled through his first chest infection.

Mrs Gower said he had dealt with it quite well, though it left him in a poor way as a result of his condition.

But throughout it all, the little one keeps a smile on his face.

“It’s hard for everybody, like any disability. It affects the whole family.

“Luke is a cheeky chappie, and he’s happy and smiley, but we do have our bad days,” she added.

All three children have been nominated in the Mail’s Children of Courage and Achievement awards.

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