A WOMAN looking to raise £70,000 for life-altering surgery to cure the debilitating illness that leaves her stricken with pain has announced details of the her first charity event.
Nina Parsons, of Elms Road, Stapenhill, is holding a special event at Apne Indian restaurant, in Burton, in August to help raise cash which could help her beat Ehlers-Danlos Syndrome (EDS).
Earlier this year, the Mail exclusively revealed that the 30-year-old was desperate to fly to America for highly specialised treatment on a condition which affects her from head to toe.
For most of the day she is confined to her bed due to agonising pain.
She said: “Healthwise I have had a very bad two months and I am conscious all of the time that this is a life-threatening condition. I am running my first charity event on August 18, at the Apne Indian restaurant.
“MP Andrew Griffiths and many other key people from Burton will be there.
“We are selling tickets for £20 each and with this you get lots and lots of food and musical entertainment on the night.
“Bosses at Apne are putting on all the music and entertainment and there will be plenty of prizes and raffles on the night.
“Anyone who would like to come along can buy tickets by contacting the restaurant on 01283 511813.”
Ms Parsons was born with her condition, but was not formally diagnosed until much later in life following a raft of health problems.
She said: “Even within a home environment it is almost impossible to undertake or do day-to-day tasks that most people take for granted.
“This is due to almost 24-hour pain, severe migraines, neurological problems, not being able to focus or move my eyes, numbness, weakness, pain that radiates from behind my eyes and the back of the skull, from my neck into my shoulders and arms and further down my spine.
“My body is slowly closing down and many of my waking hours I am confined to my bed.”
Her cause has also been backed by snooker legend and charity campaigner Willie Thorne.
To find out more about Nina, or to donate to her fund-raising drive, head online to www.ninasccibattle.co.uk