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Nina’s health bid gets backing of Burton’s MP

By Burton Mail  |  Posted: February 25, 2014

  • 20/02/14 Pics of Nina Parsons - Stapehnhill Nina Parsons - suffers from Ehlers-Danlos Syndrome....

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BURTON’S MP is backing a bid to raise £70,000 for life-altering surgery for a woman whose debilitating illness renders her stricken with pain.

Nina Parsons, of Elms Road, Stapenhill, revealed Andrew Griffiths had jumped on board with her efforts to raise cash which could help her beat Ehlers-Danlos Syndrome (EDS).

The former make-up artist told the Mail in an exclusive interview that the Tory was ‘right behind’ her efforts to fly to America for highly specialised treatment on a condition which affects her from head to toe.

For most of the day she is confined to her bed due to agonising pain.

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She said: “My parents have met with Andrew and explained all about what I am going through.

“Ironically, I could not attend the meeting as I was poorly in hospital, but intend to meet him in the future.

“He has said that he will do all he can to help raise the profile of my illness, as well as assist in my fund-raising bid as much as he can.”

Ms Parsons was born with her condition, but was not formally diagnosed until much later in her life after a raft of health problems.

The 30-year-old added: “My lust for life has drained from me.

“Even within a home environment it is almost impossible to undertake or do day-to-day tasks most people take for granted.

“This is due to almost 24-hour pain, severe migraines, neurological problems, not being able to focus or move my eyes, numbness, weakness, pain that radiates from behinds my eyes and the back of the skull , from my neck into my shoulders and arms and further down my spine.

“My body is slowly closing down and many of my waking hours I am confined to my bed.”

Despite visiting doctors up and down the country, Ms Parsons learned that the only way to potentially solve her problems was by heading to America for treatment that will cost around £70,000.

She said: “This needs to happen sooner rather than later as I am constantly bedridden in so much pain.”

To find out more about Nina, or to donate to her fund-raising drive, head online to www.ninasccibattle.co.uk

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