The family of Ethan Beales, a five-year-old boy with a rare brain condition and quadriplegic cerebral palsy, are appealing for members of the public to vote for him to win a 5,000 euro grant towards installing a hydropool at home to ease his pain.
Ethan, who lives with his family in Ashby, suffers with Polymicrogyria, a rare condition which develops on the brain before birth. The excessive folding on the brain leads to an abnormally thick cortex, the outer layer of tissue on the brain, and the irregularity can affect either one part or multiple parts.
His quadriplegic cerebral palsy, which affects all his limbs, means that he suffers with severe muscle pain and needs stretching and massaging daily to support his muscles. Recently, Ethan has learned how to walk, which is a wonderful achievement for both himself and his family.
Ethan finds relief by visiting the hydrotherapy pool at Rainbows Children’s Hospice once every two months, and his family believe that installing one at home would “ease his pain for the rest of his life”.
Generous people from across the region have been doing anything they can to raise money for Ethan’s pool, which costs around £10,000. Word spread about the fund-raising cause and Ethan’s family were eventually approached by Rob Insley, who put him forward for a Version 1 Community Trust Award.
Version 1, in Lichfield, is an enterprise which supports communities across the country. Each quarter, employees have the chance to reward their favourite charities by entering them into a competition to win a grant of up to 5,000 euros. Rob Insley, who works at the company, put forward Ethan’s cause, and voting has taken place over the last few weeks.
Ethan’s aunt, Claire Worthington, is appealing for more crucial votes before the lines close today.
The 37-year-old said: “If he won the award, it would help us to get to our target to help ease his pain - and that’s our goal, to ease his pain for the rest of his life.
“The support has been amazing, but if we can rally more people to vote, and share this story with friends and family to vote, it would made a big difference to Ethan’s life.
“He’s a very special little boy. He’s our superhero.”
You can vote for Ethan by following the link and clicking 'vote' on the video here